LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Forum Discussions (25)
| Discussions | Replies | Latest Activity |
|---|---|---|
 TreatmentI just have a question. My son who is 6 is going to be starting the treatments soon. We just have to fill out our part of the paper work an… Started by Holly Hume |
1 |
Apr 25 Reply by Mary Pruitt |
 Bracelets and BrochuresWe still have plenty of bracelets to give away. We also have brochures now if anyone is interested in receiving one. You can message me you… Started by Mary Pruitt |
0 | Nov 11, 2012 |
 CESD or not CESD?Hi everyone, Since April, I've been poked, prodded and passed from doctor to doctor like a game of hot potato in search of a diagnosis. No… Started by Jay Rosenthal |
4 |
Nov 11, 2012 Reply by Mary Pruitt |
Our First Giveaway!We have LAL Solace bracelets! I will be happy to mail free bracelets to the 1st 10 people who respond! Just provide your name and address a… Started by Mary Pruitt |
8 |
Oct 21, 2012 Reply by Mary Pruitt |
Question from RenataI was able to translate Renata's question. We are working on getting a translation on the site, but for now it is just me doing my best! He… Started by Mary Pruitt |
1 |
Oct 8, 2012 Reply by Mary Pruitt |
New Survey for Persian Jewish Community PostedIf you are a member of the Persian Jewish Community, please please take a moment to fill out this important survey and we would love if you… Started by Mary Pruitt |
0 | May 31, 2012 |
 Later onset CESD- life goes on...It is amazing how much difference a little bit of Lysosomal Acid Lipase can make. There is such a huge difference between Wolmans and the… Started by Karen deJong |
9 |
Apr 16, 2012 Reply by Melissa Aguilar |
My Status with CESD/LALI have been away for a while but am back! I have been sick and we are trying to find out what is wrong. Besides my liver and spleen being… Started by Melissa Aguilar |
2 |
Apr 16, 2012 Reply by Melissa Aguilar |
Survey....PLEASE RESPOND!!!We need YOUR help...please take two minutes to fill out this short survey. The information will be used to help families like us find the i… Started by Mary Pruitt |
2 |
Apr 13, 2012 Reply by Melissa Aguilar |
Are you looking for a specialist for CESD?Hi everyone, I found this Powerpoint presentation on my doctors' website. He has 53 patients with CESD out of 300 (Late on-set-LAL Deficie… Started by Melissa Aguilar |
1 |
Feb 27, 2012 Reply by Mary Pruitt |
