Lisa Diaz
  • Female
  • Victoria, TX
  • United States
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Lisa Diaz's Discussions

Pittsburgh, PA

Started Jun 19 0 Replies

Anyone here from Pittsburgh and doing treatment at the Children's Hospital?

Out of state move

Started this discussion. Last reply by John Buchmuller Oct 4. 1 Reply

We are currently doing treatment at the Children's Hospital here in TX. But, we are considering a move! A big one! Has anyone moved recently, I need pointers!!

Searching for information

Started this discussion. Last reply by Donna Lee Jan 11. 14 Replies

Our son (4 yrs) was diagnosed recently with LAL-D after 2 years of searching for answers. We are in Texas and they want to start treatment with Kanuba. Are there any families in TX that are currently…Continue

 

Lisa Diaz's Page

Latest Activity

Lisa Diaz posted a discussion

Pittsburgh, PA

Anyone here from Pittsburgh and doing treatment at the Children's Hospital?
Jun 19
Lisa Diaz posted a discussion

Out of state move

We are currently doing treatment at the Children's Hospital here in TX. But, we are considering a move! A big one! Has anyone moved recently, I need pointers!!
Apr 5
Lisa Diaz commented on Nicole's status
"Hi Nicole! My son had Medicaid only. What state are you in?"
Apr 5
Donna Lee replied to Lisa Diaz's discussion Searching for information
"Hi Rebecca- I just saw your post, so please forgive the delayed reply. We've had patients with ports for years.  They don't seem too bothersome. As for the scheduling, some hospitals tend to be big, slow and inflexible, even when the…"
Jan 11
Rebecca Trendy replied to Lisa Diaz's discussion Searching for information
"Well, I think I deal like everyone else. You do whatever you have to for your child(ren). My boys have each other, so they don't have to go through it alone. Yes, I have everything times 4, and they each have there own stories, issues, etc. It…"
Aug 1, 2016
Lisa Diaz replied to Lisa Diaz's discussion Searching for information
"Rebecca, how do you deal? Seriously, you have 4 boys, all positive, and we only have Bentley! I am always a nervous wreck a few days prior to any appointment. I am a complete worry wart over him. Since this has started, my anxiety level has gone…"
Aug 1, 2016
Rebecca Trendy replied to Lisa Diaz's discussion Searching for information
"Awesome! We just had treatment today. :)"
Jul 29, 2016
Lisa Diaz replied to Lisa Diaz's discussion Searching for information
"We are doing treatment at the Children's Hospital. We have our next one on Monday. First round went good!"
Jul 29, 2016
Rebecca Trendy replied to Lisa Diaz's discussion Searching for information
"That's awesome! Will you be heading to a cancer center or having home infusions? We travel to a center, and the nurses have been absolutely wonderful. We pack a bag of snacks and all their electronics. We even do a family board game, and it can…"
Jul 10, 2016
Lisa Diaz replied to Lisa Diaz's discussion Searching for information
"Thank you! We officially start treatment on the 18th of July."
Jul 9, 2016
Rebecca Trendy replied to Lisa Diaz's discussion Searching for information
"When you chose to do the ports, that is up to you. It is a ton easier. We waited due to the older two boys being in competitive swim. They didn't want to sit out. We did it toward the end of the school that way they have plenty of time to…"
Jul 4, 2016
Lisa Diaz replied to Lisa Diaz's discussion Searching for information
"We just had an appt in June and met with the dr. We hope to begin treatment before the end of this month. Do they put a port in right away? I think I'm more scared than anything!"
Jul 4, 2016
Lisa Diaz replied to Lisa Diaz's discussion Searching for information
"Thank you guys!"
Jul 4, 2016
Nicole replied to Lisa Diaz's discussion Searching for information
"My son is 4 and has been on Kanuma since January.  He has a port and receives the treatment every other wednesday. We are from Indiana so we did 6 months in indy at the children's hospital, but now have just been cleared for home health.…"
Jun 24, 2016
Rebecca Trendy replied to Lisa Diaz's discussion Searching for information
"They are all doing well. Ast/alt and cholesterol levels are all basically normal now. They have been on the treatment since October. I fear this will effect them in many ways, but not always in a bad. My oldest son just graduated and plans to be a…"
Jun 14, 2016
Lisa Diaz replied to Lisa Diaz's discussion Searching for information
"How are they doing? How long have they been on treatment? Were you scared to death in the beginning? Has it gotten easier? Does this affect them in school? Lol, I have tons of questions!"
Jun 14, 2016

Profile Information

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall (2 comments)

At 10:16am on May 25, 2016, Brett B. said…
Hi Lisa, Welcome to LAL Solace. Please let us know if you have any questions or if there is anything that we can do to help.

Brett
At 10:23am on May 25, 2016, Lisa Diaz said…
Thank you!

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