Rebecca Trendy
  • Female
  • Port Huron, MI
  • United States
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Rebecca Trendy's Discussions

News Story

Started this discussion. Last reply by Rebecca Trendy Jun 24, 2016. 5 Replies

Our local news did a story on our family, and LAL-D. They did an excellent job explaining the disease. I am very happy with how the story turned out. Feel free to share the story to help get the word…Continue

Introducing my family

Started this discussion. Last reply by Sara Salinas Mar 11, 2016. 19 Replies

Hello everyone! My boys have been struggling with liver and cholesterol problems for over 9 years now, and it took years of testing to finally get our dignosis this past May. All four of my boys (17,…Continue

 

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Profile Information

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

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Comment Wall (2 comments)

At 11:37pm on February 27, 2016, Dorothy said…

Hello Rebecca , Are the infusions done only if there is cirrhosis ? Do you have to get them as soon as you are diagnosed ?

At 12:02am on February 28, 2016, Rebecca Trendy said…
I am not a doctor, but what I have learned about the liver is that cirrhosis has 4 stages. Stage 1 fatty liver, stage 2 scar tissue, stage 3 scar tissue with "bridges" and stage 4 is liver failure. I have 3 boys with stage 2, and 1 in stage 3. The liver can heal itself, but they never revert back stages. Plus, the only stage the Kanuma cannot help with is liver failure. So treatments would need to be started before stage 4. I would suggest the sooner treatments starts the better. My son, who in stage 3, was my biggest worry while we were waiting. We had to wait about 5 months and he is doing extremely well. We have only had blood work done after treatments, but they will have repeat CT scans this summer. Not sure yet when they will have repeat biopsies. I am sure a doctor could explain it a whole lot better. But I hope I helped! ☺

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