Sally Butler
  • Female
  • Great Neck, NY
  • United States
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Sally Butler's Friends

  • Pamela Marcus
  • Donna Lee
 

Sally Butler's Page

Profile Information

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Myself

Comment Wall (1 comment)

At 9:11am on July 30, 2014, Pamela Marcus said…
Hi Sally! I am hoping to be a consultant with a company that has developed a therapy for LAL! I am an intense patient advocate and truly believe that every single patient deserves good treatment options even in the rarest of diseases. I am learning more and more about LAL- and from the bottom of my heart, I hope I have the opportunity to make a difference. In addition, if this does come to fruition- I will do anything I can to spread the word to patients and families to this website! I love seeing the community support- families and patients so desperately need to have a place to share stories and get more information. Best to you always! Pam

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