Shawn Agnew
  • Male
  • Haddonfield, NJ
  • United States
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  • Karen deJong
 

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Profile Information

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Shawn Agnew's Blog

New to LAL Solace

Posted on August 19, 2011 at 5:17pm 3 Comments

All,

We are the parents of a CESD patient. Our oldest daughter, Maureen, was diagnosed with CESD when she was 5 years old. She is now 14 and we are glad to hear about information being shared on this website. We knew about the disease and it's complications from our daughters specialist at Childrens Hospital in Philadelphia but now can share with others in a similar situation. We also have 3 other daughters that are unaffected by the disease (they don't have it nor do they have the…

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Comment Wall (1 comment)

At 2:29pm on August 24, 2011, Karen deJong said…
Welcome and thankyou for joining! It is encouraging to hear about other people that have lived with CESD.

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