Edina Pocsaji
  • Female
  • Budapest
  • Hungary
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  • Sara Salinas

Edina Pocsaji's Discussions

I wait for the Kanuma treatment for more than 6 month in Hungary

Started Dec 23, 2017 0 Replies

Hello Everyone,My name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6 months ago for a government accept the treatment. My son is…Continue

 

Edina Pocsaji's Page

Latest Activity

Edina Pocsaji and Sara Salinas are now friends
Feb 27
Edina Pocsaji left a comment for Florian Abel
"Dear Tatyana, if you fined out something to really could get treatment in Germany please inform me, because we have a same problem in Hungaryas You in Ukraine. I appreciate. "
Dec 23, 2017
Edina Pocsaji posted a discussion

I wait for the Kanuma treatment for more than 6 month in Hungary

Hello Everyone,My name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6 months ago for a government accept the treatment. My son is the FIRST in my country!! Can somebody know if my country not accept, where i can ask for help? That correct, he have to start as soon as possible? What can i do? My son stomach really get bigger, which mean bigger his liver and his spleen. Thank you all your answer.See More
Dec 23, 2017
Edina Pocsaji replied to Tatyana's discussion Diet for CESD patients
"Hello Tatyana, my name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6 months ago for a government accept the treatment. My son is the first in my country!! Do you fined out…"
Dec 23, 2017
Edina Pocsaji liked Tatyana's discussion Diet for CESD patients
Dec 23, 2017
Edina Pocsaji is now a member of LAL Solace Patient Community
Nov 19, 2017

Profile Information

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall (1 comment)

At 12:06pm on October 13, 2018, James Pollard said…

Good Day,

How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on ( mrjamespollard@yahoo.com ) for the full details.
Have a nice day
Thanks God bless.

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