Sara Salinas
  • Female
  • Barcelona, Spain
  • Spain
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Sara Salinas's Friends

  • Edina Pocsaji
  • Tatyana
  • gabi 62
  • Rebecca Trendy
  • Nicole
  • Lisa G
  • Aaron Levin

Sara Salinas's Discussions

High liver enzimes with treatment

Started this discussion. Last reply by Sara Salinas May 22, 2016. 2 Replies

Hi,My daughter is receiving 18 months of treatment (Kanuma) as a clinical trial 1mg/Kg.At the moment, cholesterol (HDL/LDL) seems are normalized but the liver enzymes (ALT/AST) still are high.Some of…Continue

 

Sara Salinas's Page

Latest Activity

Sara Salinas left a comment for Sara Salinas
"Dear Gabi,Thanks for your words of encouragement. We will continue to have patience and hope.Regards"
Mar 14
gabi 62 left a comment for Sara Salinas
"Welcome on my side :) Its good sign are normalized the cholesterol Well, give Time the liver :)"
Mar 12
gabi 62 and Sara Salinas are now friends
Mar 12
Sara Salinas replied to Tatyana's discussion Diet for CESD patients
"Hi Edina and Tatyana,I'm Sara from Spain.My 6 years old daughter is affected by LALD. She is treated with Kanuma since her 3 years old as a clinical trial. The last month the Spanish Government approved the treatment.I belong to the only…"
Feb 27

Profile Information

What brings you to LAL Solace?
Other
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall (3 comments)

At 4:51pm on November 25, 2014, Brett B. said…
Hi Sara,

Thanks for the feedback. He was approved as a member earlier today. I was hesitant to accept his membership for a few reasons,but approved him for now. I was advised that he sent out spam messages, so I deleted his membership a short time after he was approved. Unfortunately, there have been too many people trying to join only to send spam. Hopefully I can recognize these people before they are approved.

Once again, thanks for letting me know.

Brett
At 6:07pm on March 12, 2018, gabi 62 said…

Welcome on my side :)

Its good sign are normalized the cholesterol

Well, give Time the liver :)

At 5:22pm on March 14, 2018, Sara Salinas said…

Dear Gabi,
Thanks for your words of encouragement.

We will continue to have patience and hope.
Regards

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